I have been sitting here trying to write an update for a while. Today is a hard day. Last night was a hard night. Lily has been in a lot of pain in her legs, which we are beginning to get under control. She has been asleep most of the morning - which is very unusual for her. Honestly, for now, while her body is adjusting to another medicine to help with the side effects of the chemo, it is a relief to see her being able to rest.
Lily will finish the methotrexate infusion in a couple of hours. After that, she will continue to get fluids to flush the chemo out of her body. Just like the last time, when her body has flushed out the medicine and her levels are acceptable we will be able to go home.
Lily is a thinker, and she has been thinking a lot about what happened the last time she got this medicine. Even though the circumstances are different, and the method of delivery is different, she is still afraid that she might have the same type of reaction. Honestly, I am a little afraid myself. In my head, I know that we are exactly where we need to be, with the best people taking care of her - but it is so hard to watch your child worry and be afraid. Please pray with me that God will guard her heart and her mind. Pray that this medicine will do exactly what it is designed to do.
Thank you so much for what you are doing to support our girl and our family. We love all of you.
Praying for sweet Lily and the entire Beam family!
I am praying with you for Lily's peace and healing.
I know this is so much harder on yall because of Tucker and sweet Lily is older. I pray God will calm her fear and everything will go very smoothly. Love ya, Sandy
Praying for y’all!
I continue to pray for this precious child-----God Bless you Lily!